The Diagnosis Is Terminal

The Diagnosis Is Terminal
Author: Jim M. Coston Jr.
Publisher: WestBow Press
Total Pages: 69
Release: 2015-09-30
Genre: Medical
ISBN: 1512712809

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After receiving the bad news of terminal illness, many told the author the first thought they had was What do we do now? This prompted the production of The Diagnosis is Terminal. It covers the initial notification, wills, legal suggestions, intensive care, doctors notes, record keeping, drugs, oximeter use, CBC spreadsheet construction, sample obituaries, hospice, last care wishes, notes for Christians, final goodbyes, and much more. Included is a checklist, in order, of some 120 activities. This includes after-death actions. None of us know it all.

Before the Night Comes

Before the Night Comes
Author: Adolfo Quezada
Publisher: Createspace Independent Publishing Platform
Total Pages: 138
Release: 2016-07-16
Genre:
ISBN: 9781534686229

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Imagine yourself going into the lab for a routine blood test one day and being diagnosed with an incurable and terminal cancer the next. Imagine yourself reeling from the shocking news that you are going to become very ill, and then you are going to die. Now imagine that, along with the terminal diagnosis, you have been granted an extended time during which you will not be affected by the rare cancer. Essentially, you will be symptom-free for a long time, perhaps even years. This is exactly what happened to Adolfo Quezada, the author of Before the Night Comes: Living in the Light of a Terminal Diagnosis. This book is a personal account of his response to this unusual diagnosis and prognosis. Quezada, a 75-year-old retired therapist, writes poignantly about the spiritual and psychological effects the diagnosis has had on his life. He considers the prelude to the illness and death a gift that allows him time to seek depth and authenticity in his life, and to grow as a person in the time he has left to live. He calls it "a due date with a grace period." In addition to a journal that Quezada kept in the months following the diagnosis, the book includes chapters on assumptions, gratitude, choices, fulfillment, living, surrender, and dying. The book, which has a spiritual element running through it, offers hope and inspiration to those who have been diagnosed with a chronic or terminal illness, or whose loved ones have. Quezada's words are relevant for, and pertinent to, anyone who is living in the prelude to death.

Living with Dying

Living with Dying
Author: Dame Cicely M. Saunders
Publisher: Oxford University Press, USA
Total Pages: 84
Release: 1989
Genre: Family & Relationships
ISBN:

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This second edition incorporates the latest developments in the treatment of the terminally ill patient. It tackles the general ethical and medical principles in the care of the dying patient and considers the details of the control of pain and other symptoms, with the hope that doctors and other professionals will support the patient and his family by sharing the truth with them and empathizing with their emotional suffering. Written by internationally renowned authors, this book is an invaluable handbook for family doctors and health professionals and a compassionate source of information for the terminally ill and their relatives.

Dying in America

Dying in America
Author: Institute of Medicine
Publisher: National Academies Press
Total Pages: 470
Release: 2015-03-19
Genre: Medical
ISBN: 0309303133

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For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.

The Management of Terminal Disease

The Management of Terminal Disease
Author: Dame Cicely M. Saunders
Publisher: Hodder Education
Total Pages: 234
Release: 1978
Genre: Health & Fitness
ISBN:

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Lasting Love

Lasting Love
Author: Caroline Wright
Publisher: Rodale Kids
Total Pages: 40
Release: 2019-08-20
Genre: Juvenile Fiction
ISBN: 1984850164

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This gorgeous picture-book meditation on loss and family love is a useful tool for children navigating a first experience with death. When a family member or another loved one becomes ill, one of the scariest aspects of their sickness is the way they may change, both physically and in spirit. The feeling of loss can come so early as the person becomes more difficult to recognize. It's a hard thing for anyone to understand, and especially so for a child. This book offers a helpful visualization of a sick person's essence as a friendly creature who remains strong and warm, even as the illness progresses. The creature is always around and never tries to cheer the child up, but only serves to keep them company. Caroline Wright and Willow Heath clearly understand that, like the creature, a book cannot "fix" a painful situation or even make it a little better. Instead they simply reflect the pain of loss back to the reader and help them understand that they are not alone.

Dying Well

Dying Well
Author: Ira Byock
Publisher: Penguin
Total Pages: 321
Release: 1998-03-01
Genre: Medical
ISBN: 110150028X

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From Ira Byock, prominent palliative care physician and expert in end of life decisions, a lesson in Dying Well. Nobody should have to die in pain. Nobody should have to die alone. This is Ira Byock's dream, and he is dedicating his life to making it come true. Dying Well brings us to the homes and bedsides of families with whom Dr. Byock has worked, telling stories of love and reconciliation in the face of tragedy, pain, medical drama, and conflict. Through the true stories of patients, he shows us that a lot of important emotional work can be accomplished in the final months, weeks, and even days of life. It is a companion for families, showing them how to deal with doctors, how to talk to loved ones—and how to make the end of life as meaningful and enriching as the beginning. Ira Byock is also the author of The Best Care Possible: A Physician's Quest to Transform Care Through the End of Life.

Breakfast, School Run, Chemo

Breakfast, School Run, Chemo
Author: Julia Watson
Publisher: Black Inc.
Total Pages: 254
Release: 2015-08-31
Genre: Biography & Autobiography
ISBN: 1925203611

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I have cancer, but it's not who I am. Mother of four girls Julia Watson thought her world was falling apart when she found out she had terminal cancer. But with humour and courage, Julia faces the greatest challenge of her life – and in the process becomes the person she'd always wanted to be. A survivor of child abuse, brought up by a mother with mental illness, Julia was no stranger to adversity. After her daughter Georgie was born with Down syndrome, she thought she'd faced it all. But when doctors offer her the chance of risky but potentially life-saving surgery, Julia faces her toughest situation yet. Follow Julia and her family, as she writes her way through the crisis, chases her dreams, gets her dancing shoes on and discovers the lighter side of life with a colostomy bag. This is a candid, entertaining look at life with cancer and living each day with humour and hope.

Pediatric Palliative Care

Pediatric Palliative Care
Author: Betty Ferrell
Publisher:
Total Pages: 161
Release: 2016
Genre: Family & Relationships
ISBN: 0190244186

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Pediatric palliative care is a field of significant growth as health care systems recognize the benefits of palliative care in areas such as neonatal intensive care, pediatric ICU, and chronic pediatric illnesses. Pediatric Palliative Care, the fourth volume in the HPNA Palliative Nursing Manuals series, highlights key issues related to the field. Chapters address pediatric hospice, symptom management, pediatric pain, the neonatal intensive care unit, transitioning goals of care between the emergency department and intensive care unit, and grief and bereavement in pediatric palliative care. The content of the concise, clinically focused volumes in the HPNA Palliative Nursing Manuals series is one resource for nurses preparing for specialty certification exams and provides a quick-reference in daily practice. Plentiful tables and patient teaching points make these volumes useful resources for nurses.

Approaching Death

Approaching Death
Author: Committee on Care at the End of Life
Publisher: National Academies Press
Total Pages: 457
Release: 1997-10-30
Genre: Medical
ISBN: 0309518253

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When the end of life makes its inevitable appearance, people should be able to expect reliable, humane, and effective caregiving. Yet too many dying people suffer unnecessarily. While an "overtreated" dying is feared, untreated pain or emotional abandonment are equally frightening. Approaching Death reflects a wide-ranging effort to understand what we know about care at the end of life, what we have yet to learn, and what we know but do not adequately apply. It seeks to build understanding of what constitutes good care for the dying and offers recommendations to decisionmakers that address specific barriers to achieving good care. This volume offers a profile of when, where, and how Americans die. It examines the dimensions of caring at the end of life: Determining diagnosis and prognosis and communicating these to patient and family. Establishing clinical and personal goals. Matching physical, psychological, spiritual, and practical care strategies to the patient's values and circumstances. Approaching Death considers the dying experience in hospitals, nursing homes, and other settings and the role of interdisciplinary teams and managed care. It offers perspectives on quality measurement and improvement, the role of practice guidelines, cost concerns, and legal issues such as assisted suicide. The book proposes how health professionals can become better prepared to care well for those who are dying and to understand that these are not patients for whom "nothing can be done."