The Art of Conversation Through Serious Illness:Lessons for Caregivers

The Art of Conversation Through Serious Illness:Lessons for Caregivers
Author: Richard McQuellon
Publisher: Oxford University Press, USA
Total Pages: 160
Release: 2010-04-29
Genre: Medical
ISBN: 9780195389227

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Every day, thousands of people receive a diagnosis of serious, life-threatening illness, and their families and friends suddenly become caregivers. Despite the best of intentions it is not always easy to communicate well under these circumstances, or find deep empathy for something one has never before experienced. When is it best to speak, and when to be silent? How can someone provide real comfort, and how can relationships with loved ones facing serious illness be enhanced in this most difficult time?This book is about how to be an encouraging caregiver and friend under the most difficult circumstances, when the possibility of death is all too real The authors believe that open dialogue must not be avoided until the last minute when opportunities will be limited, but that caregivers and loved ones can embrace this time, mortal time, honestly as a way to sensitively and compassionately engage with those for whom a central fact of life is realized--that all of our lives are time-limited.In The Art of Conversation Through Serious Illness, the authors consider how to best listen to and speak with one facing life-threatening illness, with lessons on being a primary conversation partner, becoming properly empathic and receiving empathy, maintaining everyday conversation, using platitudes appropriately, understanding healthy denial, and talking about dying. Offering bedside guidance usually only available to professionals and peppered with insightful anecdotes from the authors' own experiences, this gentle, succinct book is appropriate for anyone going through this uniquely difficult yet universal life experience.

The Art of Conversation in Cancer Care

The Art of Conversation in Cancer Care
Author: Richard P. McQuellon
Publisher: Oxford University Press
Total Pages: 161
Release: 2021-09-23
Genre: Medical
ISBN: 0197500315

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Every day, thousands of people are diagnosed with cancer or other life-threatening illnesses. Despite the best of intentions, it is not always easy to communicate well under these circumstances or find deep empathy for something one has never experienced. When is it best to speak, and when to be silent? How can someone provide real comfort, and how can relationships with loved ones facing serious illness be enhanced in this most difficult time? Written by a psychosocial oncologist and psychologist-theologian, The Art of Conversation in Cancer Care: Lessons for Caregivers offers practical suggestions for health professionals, families, and friends about talking to one who has cancer. This revised and updated second edition is organized around the themes of mortal time and healing conversation with cancer patients and their caregivers. Mortal time is not so much a specific period, but rather, the psychological experience encountering mortality that often accompanies the diagnosis of cancer. The first section of the book articulates the many ways people experience mortal time, including a range of adaptive and less adaptive methods. Next, the basic elements of healing conversation are delineated, with an emphasis on the hope that can spring from talking with a trusted companion. Empathy, listening carefully, and responding thoughtfully and compassionately are discussed. In the final section, the authors offer guidance for caregivers. This section includes material on the risks and costs of companionship as well as personal virtues that help a person navigate the demands of mortal time with their loved one. The authors discuss resilience and the consequences of absorbing suffering including empathy shift where the cancer caregiver becomes less empathic with minor illnesses in others. They conclude with the power of healing conversation in mortal time as a source of hope. Throughout, numerous patient vignettes illustrate the art of conversation in cancer medicine.

The Art of Conversation Through Serious Illness

The Art of Conversation Through Serious Illness
Author: Richard McQuellon
Publisher: Oxford University Press
Total Pages: 162
Release: 2010-04-29
Genre: Medical
ISBN: 0199752869

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Every day, thousands of people receive a diagnosis of serious, life-threatening illness, and their families and friends suddenly become caregivers. Despite the best of intentions it is not always easy to communicate well under these circumstances, or find deep empathy for something one has never before experienced. When is it best to speak, and when to be silent? How can someone provide real comfort, and how can relationships with loved ones facing serious illness be enhanced in this most difficult time? This book is about how to be an encouraging caregiver and friend under the most difficult circumstances, when the possibility of death is all too real The authors believe that open dialogue must not be avoided until the last minute when opportunities will be limited, but that caregivers and loved ones can embrace this time, mortal time, honestly as a way to sensitively and compassionately engage with those for whom a central fact of life is realized--that all of our lives are time-limited. In The Art of Conversation Through Serious Illness, the authors consider how to best listen to and speak with one facing life-threatening illness, with lessons on being a primary conversation partner, becoming properly empathic and receiving empathy, maintaining everyday conversation, using platitudes appropriately, understanding healthy denial, and talking about dying. Offering bedside guidance usually only available to professionals and peppered with insightful anecdotes from the authors' own experiences, this gentle, succinct book is appropriate for anyone going through this uniquely difficult yet universal life experience.

The Art of Conversation in Cancer Care

The Art of Conversation in Cancer Care
Author: Richard P. McQuellon
Publisher: Oxford University Press
Total Pages: 161
Release: 2021
Genre: Medical
ISBN: 0197500293

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"We use "mortal time" in our work to mean the experience of human beings confronting the prospect of death. This confrontation can stimulate intense feelings, a flurry of thoughts, and erratic or unusual behavior. In the broadest sense, mortal time is entered whenever death comes near, and that can happen either directly or vicariously. Hearing the words, "you have cancer," and signing a medical consent form where death is a possible medical "complication," are direct experiences of mortal time. Learning of a loved one's cancer diagnosis, losing a family member in an automobile accident, or reading about a missing child are vicarious experiences of mortal time. The power of tragedy in the theatre can brings us into the experience of mortality. King Lear's madness in the face of betrayal propels him toward an untimely death. The focus in this book is on the particular and powerful experience of entering mortal time when someone receives a diagnosis of cancer, a life-threatening illness. As we noted in our introduction to this second edition, the experience of mortal time in cancer medicine has changed with new treatments. A cancer diagnosis could mean an illness where rapid progression toward death is looming, or where there is only the distant possibility of death. Now there is a third option: the prospect of longer survival with metastatic disease due to the promise of additional therapies, facilitated by next generation genome sequencing. This means, a lengthier period of mortal time and uncertainty for many cancer patients. MORTAL TIME: HOW LONG DOES IT LAST? There are, of course, many instances in which people far exceed their statistically predicted life span. This holds true whether it be the prediction of a physician in the midst of treating an illness or the projected life span of an insurance life-expectancy table. In Part II we give an example of how misleading statistics can be when we discuss the idea of false hope. When mortal time looms with the diagnosis of cancer, it may stretch from days to years, with patients encountering both helpful treatments that lead to periods of remission and recurrences of disease requiring additional treatment. Some patients may never experience a time when it is apparent that they are dying until the last days. The interval between living and dying that we are concerned with here is not primarily chronological time, measured in days, weeks, and months. The hallmark of mortal time is the person's unique biological, psychological, social, and spiritual experience of the prospect and meaning of death, a prospect that confronts their caregivers as well. Mortal time is "kairos" time, the ancient Greek word meaning the time of decisions. When someone enters mortal time directly, their caregivers enter the same time zone vicariously. What they do together in mortal time, especially how they speak and listen to each other, affects the quality and meaning of life for all involved, in the moment and beyond"--

The Divine Art of Dying, Second Edition

The Divine Art of Dying, Second Edition
Author: Karen Speerstra
Publisher: Augsburg Fortress Publishers
Total Pages: 240
Release: 2022-02
Genre: Family & Relationships
ISBN: 1506478875

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The Divine Art of Dying aims to empower people who are dying to live as fully as they can until life's end. The book includes reflections from Karen Speerstra's hospice journal and essays written jointly by Speeratra and Herbert Anderson on learning to wait, letting go, giving gifts, and telling stories. Each chapter has suggestions for caregivers.

Posttraumatic Growth in Clinical Practice

Posttraumatic Growth in Clinical Practice
Author: Lawrence G. Calhoun
Publisher: Routledge
Total Pages: 186
Release: 2013
Genre: Medical
ISBN: 0415898692

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From the authors who pioneered the concept of posttraumatic growth comes Posttraumatic Growth in Clinical Practice, a book that brings the study of growth after trauma into the twenty-first century. Clinicians will find a framework that's easy to use and flexible enough to be tailored to the needs of particular clients and specific therapeutic approaches. And, because it utilizes a model of relating described as "expert companionship," clinicians learn how to become most empathically effective in helping a variety of trauma survivors. Clinicians will come away from this book having learned how to assess posttraumatic growth, how to address it in treatment, and they'll also have a basic grasp of the ways the changes they're promoting will be received in various cultural contexts. Case examples show how utilizing a process developed from an empirically-based model of posttraumatic growth can promote important personal changes in the aftermath of traumatic events.

The Nell Dialogues

The Nell Dialogues
Author: Richard P. McQuellon
Publisher: Oxford University Press
Total Pages: 249
Release: 2021
Genre: Medical
ISBN: 0190091010

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"Main themes: Radical changes in appearance and life interrupts dying on schedule. This is the first meeting we recorded and the last in the Comprehensive Cancer Center clinic. The primary theme is readiness for the next step toward death and frustration at its delay. Nell's physical status is declining rapidly; it is hard for her to get in and out of a car and to walk. Her body is visibly deteriorating, plodding toward death. This is the first time she speaks in depth about the dramatic, frightening changes she sees in her body"--

The Art of Dying Well

The Art of Dying Well
Author: Katy Butler
Publisher: Scribner
Total Pages: 288
Release: 2020-02-11
Genre: Self-Help
ISBN: 1501135473

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This “comforting…thoughtful” (The Washington Post) guide to maintaining a high quality of life—from resilient old age to the first inklings of a serious illness to the final breath—by the New York Times bestselling author of Knocking on Heaven’s Door is a “roadmap to the end that combines medical, practical, and spiritual guidance” (The Boston Globe). “A common sense path to define what a ‘good’ death looks like” (USA TODAY), The Art of Dying Well is about living as well as possible for as long as possible and adapting successfully to change. Packed with extraordinarily helpful insights and inspiring true stories, award-winning journalist Katy Butler shows how to thrive in later life (even when coping with a chronic medical condition), how to get the best from our health system, and how to make your own “good death” more likely. Butler explains how to successfully age in place, why to pick a younger doctor and how to have an honest conversation with them, when not to call 911, and how to make your death a sacred rite of passage rather than a medical event. This handbook of preparations—practical, communal, physical, and spiritual—will help you make the most of your remaining time, be it decades, years, or months. Based on Butler’s experience caring for aging parents, and hundreds of interviews with people who have successfully navigated our fragmented health system and helped their loved ones have good deaths, The Art of Dying Well also draws on the expertise of national leaders in family medicine, palliative care, geriatrics, oncology, and hospice. This “empowering guide clearly outlines the steps necessary to prepare for a beautiful death without fear” (Shelf Awareness).

Integrating the Patient and Caregiver Voice into Serious Illness Care

Integrating the Patient and Caregiver Voice into Serious Illness Care
Author: National Academies of Sciences, Engineering, and Medicine
Publisher: National Academies Press
Total Pages: 101
Release: 2017-10-17
Genre: Medical
ISBN: 030946031X

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Millions of peopleâ€"infants, children, adults, and their familiesâ€"are currently coping with serious illness in the United States. Efforts are intensifying to improve overall care quality through the delivery of person-centered and family-oriented services, for patients of all ages and across disease stages, care settings, and specialties. While aging Baby Boomers are increasing the proportion of patients in the Medicare population over time, the sickest and most vulnerable patients needing health system support and other services to meet their complex needs can be found across the age spectrum and in a broad range of care settings, from perinatal care to geriatric care. Recognizing the need to thoughtfully consider and address the challenges and opportunities in efforts to improve care quality and value, the Roundtable on Quality Care for People with Serious Illness of the National Academies of Sciences, Engineering, and Medicine held the public workshop Integrating the Patient and Caregiver Voice into Serious Illness Care, on December 15, 2016, in Washington, DC. This workshop was the first in a series planned by the roundtable, and was designed specifically to bring together diverse personal perspectives and experiences about priorities and values that are important to patients and families coping with serious illness, and to consider solutions that support integration of these priorities and values in practice. This publication summarizes the presentations and discussions from the workshop.

The Sacred Art of Caregiving

The Sacred Art of Caregiving
Author: James W. Ramage
Publisher: AuthorHouse
Total Pages: 168
Release: 2012-05-30
Genre: Self-Help
ISBN: 1468576771

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Few books have been written specifically for those dedicated men and women who labor as caregivers in our healthcare system. This is unusual when one considers that the services provided those needing medical care is largely their responsibility. This book is an educational resource which addresses the multi-faceted and often complex physical, psychological, social and spiritual issues which challenge the caregivers. The information contained in this text will be especially beneficial to these caregivers who provide direct, hands-on care to the elderly residing in special and long-term care facilities as well as home care. It will assist this specific group of caregiver with little or no formal training in the health care profession to participate more realistically in goal setting strategies, increase self-confidence, and improve their decision making skills. It will give them a greater sense of purpose and an improved sense of security in performing their caregiving responsibilities. It will also be helpful to the caregiver in his or her accumulating knowledge about the elderly resident. For example, he or she will become familiar with family structure, stressors which exist, coping skills, social support structures, physical, psychological, psychosocial and spiritual symptomatology as well as ethnic and cultural issues. The author is of the opinion that the information contained in this book will, in addition, increase the caregivers knowledge base. For example, it will include effective ways of communicating with the elderly for whom they are caring including the use of behavioral management improving the caregivers skill base making their jobs easier, and more productive. Such knowledge will improve their quality of life as well as the individual resident for whom they are responsible.