Participatory Research in Palliative Care

Participatory Research in Palliative Care
Author: J. M. Hockley
Publisher: Oxford University Press
Total Pages: 209
Release: 2013
Genre: Medical
ISBN: 0199644152

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Participatory Research in Palliative Care discusses participatory research methods within the discipline of palliative care. Providing an overview of the action research methods, it uses exemplars from studies within palliative care, as well as discusses the prominent issues currently faced in this methodology from a global perspective.

Participatory Research in Palliative Care: Actions and reflections

Participatory Research in Palliative Care: Actions and reflections
Author: Jo Hockley
Publisher: OUP Oxford
Total Pages: 208
Release: 2012-12-06
Genre: Medical
ISBN: 0191651990

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Participatory research is a relatively new method of researching practice especially within palliative care. It differs from other methodologies in that there is an expectation of action within the research process. The values that underpin participatory research are collaboration, empowerment, and reflection. In the current climate of collaboration and working with people in healthcare, participatory research methods are gaining increasing interest when there is a desire to bring about change. Organisational change is becoming an important focus as we look at ways of not only reducing costs but at the same time improving quality of care. While palliative care puts the patient and family at the centre, Participatory Research in Palliative Care discusses a new research methodology that puts practitioners at the heart of the research process as collaborators who work together with researchers to resolve problems in practice. Divided into three sections, it provides theoretical groundings of action research, a greater focus on exemplars from studies within palliative care, and discusses prominent issues when using such a methodology. All three sections are illustrated by an action research study undertaken by the author within a palliative care setting. Participatory Research in Palliative Care is written by international, multi-disciplinary authors who explore a collaborative approach to embark on research. It will appeal to health and social care professionals, academics undertaking research within palliative care, and the management of organisations where people with end of life care needs are cared for, including long-term care homes.

Participatory Research in Palliative Care

Participatory Research in Palliative Care
Author: J. M. Hockley
Publisher:
Total Pages: 190
Release: 2013
Genre: Palliative treatment
ISBN: 9780191749094

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'Participatory Research in Palliative Care' discusses participatory research methods within the discipline of palliative care. Providing an overview of the action research methods, it uses exemplars from studies within palliative care as well as discusses the prominent issues currently faced in this methodology from a global perspective.

Patient Participation in Palliative Care

Patient Participation in Palliative Care
Author: Barbara Monroe
Publisher: OUP Oxford
Total Pages: 220
Release: 2003-06-19
Genre: Medical
ISBN: 0191592935

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Patient participation and user involvement are central to current thinking about the effective delivery of desired healthcare outcomes. Working with the person who lies behind every patient is core to palliative care. A voice can only become significant when it is listened to and acted upon. With palliative care increasingly addressing the needs of people with a variety of conditions in a range of settings, as well as with advances in research, technology, and information, the challenge to be 'a voice for the voiceless' is greater than ever. This book addresses key aspects in the provision of patient-centred palliative care and tracks significant developments in user involvement. It sets the philosophy within the cultural, social and political context of modern healthcare, particularly addressing issues of quality, standards, education and bereavement. A key component in the delivery of high quality palliative care is the multi-professional team. Following a discussion of teamwork, five core professions present a critical analysis of their working practices. The book concludes with a commentary from a palliative care user and a bereaved carer. It is often somewhat glibly asserted that the patient is, or should be, at the centre of care. There have been few attempts to examine how to keep him or her there without professional needs and protocols crowding him or her out. This book asks how we listen and why we listen. The book focuses on the challenges of how professionals can keep the needs of the patient central in clinical care and how the patient can influence the direction of that care.

Research methods in palliative care

Research methods in palliative care
Author: Julia M Addington-Hall
Publisher: OUP Oxford
Total Pages: 336
Release: 2007-06-07
Genre: Medical
ISBN: 0191574813

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Palliative and end of life care are concerned with the physical, social, psychological and spiritual care of people with advanced disease. It currently has a poorly developed research base, but the need to improve this is increasingly recognised. One of the reasons for the lack of research - and the variable quality of the research that is undertaken - is the difficulty of conducting research with very ill and bereaved people. Standard and well-established research methods may need to be adapted to work in this context. This means that existing research methods textbooks may be of limited use to palliative care practitioners seeking to do research for the first time, or to more experienced researchers wanting to apply their knowledge in palliative care settings. This research methods textbook is the first to be written specifically for palliative care. It has been edited by four experienced palliative care academics with acknowledged expertise and international reputations in this field. It encompasses methods used in both clinical and health services research in palliative care, with sections on clinical, epidemiological, survey and qualitative research, as well as a section covering skills needed in any research project. Each chapter provides readers with an up to date overview of the research method in question, an understanding of its applicability to palliative care and of the particular challenges of using it in this setting. It is essential reading for all palliative care researchers.

Partners in Palliative Care

Partners in Palliative Care
Author: Mary Beth Morrissey
Publisher: Routledge
Total Pages: 143
Release: 2013-10-31
Genre: Medical
ISBN: 1317966929

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The Collaborative for Palliative Care ("Collaborative") is a grassroots consortium of public and private organizations that came together in 2005 for the purposes of studying the increasing need for palliative care and the methods for such care. It has grown from a small fledgling group to a membership of over 50 community-based organizations and volunteers dedicated to improving care of the seriously ill through education, research and advocacy. The Collaborative bridges policy, research and practice in its initiatives and vision for the future. Partners in Palliative Care examines specific areas of concern that the Collaborative has addressed in its education programs and advocacy, as well as the collaborative processes that have been so successful in building community assets. Areas of concentration have been diverse and include advance care planning, relational communication paradigms, community capacity building, the role of culture and spirituality in palliative care, the meaning of pain and suffering for seriously ill individuals, and the ethics of health care costs in palliative and end-of-life systems of care. This book was originally published as a special issue of the Journal of Social Work in End-of-Life and Palliative Care.

Perspectives on Behavioural Interventions in Palliative and End-of-Life Care

Perspectives on Behavioural Interventions in Palliative and End-of-Life Care
Author: Rebecca S Allen
Publisher: Routledge
Total Pages: 210
Release: 2018-06-12
Genre: Psychology
ISBN: 1351815156

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The challenges faced by individuals and families at the end of life are still incredibly diverse, and many behavioural interventions and clinical approaches have been developed to address this great diversity of experiences in the face of dying and death, helping providers to care for their clients. Perspectives on Behavioural Interventions in Palliative and End-of-Life Care is an accessible resource that collates and explores interventions that can be used to address a wide range of behavioural, psychological, social and spiritual issues that arise when people are facing advanced chronic or life-limiting illness. With perspectives from experienced clinicians, providers, and caregivers from around the world, this book offers a strong foundation in contemporary evidence-based practice alongside seasoned practice insights from the field. Its chapters explore: Interventions to enhance communication and decision making The management of physical and mental health symptoms Meaning-Centred Psychotherapy for cancer patients Dignity Therapy Interventions embracing cultural diversity and intersectionality. Together with Perspectives on Palliative and End-of-Life Care: Disease, Social and Cultural Context, the book provides a foundation for collaborative international and interprofessional work by providing state-of science information on behavioural interventions addressing mental health and wellness. It is of interest to academics, researchers and postgraduates in the fields of mental health, medicine, psychology and social work, and is essential reading for healthcare providers and trainees from psychosocial and palliative medicine, social work and nursing.

50 Studies Every Palliative Care Doctor Should Know

50 Studies Every Palliative Care Doctor Should Know
Author: David Hui
Publisher: Oxford University Press
Total Pages: 345
Release: 2018-04-16
Genre: Medical
ISBN: 0190658630

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50 Studies Every Palliative Doctor Should Know presents key studies that have shaped the practice of palliative medicine. Selected using a rigorous methodology, the studies cover topics including: palliative care, symptom assessment and management, psychosocial aspects of care and communication, and end-of-life care. For each study, a concise summary is presented with an emphasis on the results and limitations of the study, and its implications for practice. An illustrative clinical case concludes each review, followed by brief information on other relevant studies. This book is a must-read for health care professionals and anyone who wants to learn more about the data behind clinical practice.

Handbook of Community-Based Participatory Research

Handbook of Community-Based Participatory Research
Author: Steven S. Coughlin
Publisher: Oxford University Press
Total Pages: 305
Release: 2017-01-11
Genre: Medical
ISBN: 0190652241

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Community-based participatory research (CBPR) emerged in response to the longstanding tradition of "top-down" research-studies in which social scientists observe social phenomena and community problems as outsiders, separate from the participants' daily lives. CBPR is more immersive, fostering partnerships between academic and community organizations that increase the value and consequence of the research for all partners. The current perspectives gleaned from this school of research have been wildly well-received, in no small part because they address the complexity of the human experience in their conclusions. HANDBOOK OF COMMUNITY-BASED PARTICIPATORY RESEARCH codifies the methods and theories of this research approach and articulates an expansive vision of health that includes gender equality, safe and adequate housing, and freedom from violence. Topic-based chapters apply the theory and methods of CBPR to real world problems affecting women, ethnic and racial minorities, and immigrant communities such as sexual violence, exposure to environmental toxins, and lack of access to preventive care as well as suggesting future directions for effective, culturally sensitive research. HANDBOOK OF COMMUNITY-BASED PARTICIPATORY RESEARCH is required reading for academics, policy makers, and students seeking meaningful social change through scholarship.