Living Well with Dystonia

Living Well with Dystonia
Author: Daniel Truong, MD
Publisher: Springer Publishing Company
Total Pages: 200
Release: 2016-03-28
Genre: Health & Fitness
ISBN: 1617052744

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A patient-oriented guide to living life to your fullest with dystonia. Dystonia doesn’t have to rule your life. This empowering and encouraging resource, written for dystonia patients and their families and caregivers, provides an overview of a variety of dystonias including cervical dystonia, spasmodic dysphonia, blepharospasm, and writer’s cramp, and the breadth of treatment options available. The authors also offer practical advice for improving quality of life and managing pain and other symptoms. This updated second edition includes expanded discussions of new medications, chemodenervation with botulinum toxin, deep brain stimulation, genetic breakthroughs, and other areas. Written by three acclaimed neurologists with perspectives from patients that illuminate and inform, Living Well with Dystonia will help you: Understand your specific dystonia and how it progresses Determine the best treatment approaches Alleviate symptoms with rehabilitation exercises Address the “hidden symptoms,” such as social embarrassment Blurbs : "Living Well with Dystonia provides a balanced and easily understandable introduction to a chronic condition that is rarely discussed. Treatments and exercises are presented honestly - no miracle cures, but paths toward symptom relief. Simple diagrams of the nervous system and affected limbs or muscles are very helpful, and comments from actual patients personalize the discussions throughout. Well written. Recommended." - CAPHIS Consumer Connections "This kind of comprehensive guide to dystonia has long been needed. It will be an invaluable resource to patients, their families and caregivers."-Bonnie Strauss, President and Founder, The Bachmann-Strauss Dystonia & Parkinson Foundation, Inc. "Dr. Daniel Truong and co-authors have done a great service to patients with blepharospasm and other forms of dystonia by providing a clear and readable discussion of the disorders, their causes and therapeutic alternatives. Ignorance enhances fear and disability, whereas knowledge allows patients and their families to optimally adjust to chronic conditions, thereby improving their quality of life. This book should be read by all dystonia suffers and their loved ones."-Mary Lou Koster Thompson, President, Benign Essential Blepharospasm Research Foundation

Living Well with Dystonia

Living Well with Dystonia
Author: Karen Frei, MD
Publisher: Demos Medical Publishing
Total Pages: 184
Release: 2010-03-15
Genre: Health & Fitness
ISBN: 1935281690

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Comprehensive information for patients with dystonia and the people close to them. You can live well with dystonia. This empowering and encouraging resource and tool, written for both individuals with chronic condition and their families, provides an overview of a variety of dystonias, (including cervical dystonia, spasmodic dysphonia, and writerís cramp) and the breadth of treatment options available, as well as practical advice for improving quality of life. Written by three acclaimed neurologists, Living Well with Dystonia will help you: Understand your specific dystonia and how it progresses Determine the best treatment approaches Alleviate symptoms with rehabilitation exercises Address the ìhidden symptomsî such as social embarrassment

Living Well with Dystonia

Living Well with Dystonia
Author: M. D. Pathak (Mayank)
Publisher:
Total Pages:
Release: 2010
Genre:
ISBN:

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Lt;lt;Pgt;gt;lt;lt;Igt;gt;Living Well with Dystonia: A Patient Guidelt;lt;/Igt;gt; provides comprehensive information on a wide array of dystonias. It is intended individuals with various forms of dystonia who want to adjust lifes.

Living Well with Dystonia

Living Well with Dystonia
Author: Daniel Truong
Publisher: Demos Medical Publishing
Total Pages: 185
Release: 2010-03-15
Genre: Health & Fitness
ISBN: 1932603239

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Dystonia is a movement disorder that causes the muscles to contract and spasm involuntarily. According to the Dystonia Medical Foundation, estimates suggest that no less than 300,000 people in North America are coping with some form of dystonia. Living We

Diagnosis Dystonia

Diagnosis Dystonia
Author: Tom Seaman
Publisher: Createspace Independent Publishing Platform
Total Pages: 334
Release: 2015-03-20
Genre: Dystonia
ISBN: 9781501004407

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Diagnosis Dystonia takes you on a personal and educational journey full of valuable information for those newly diagnosed, as well as those who have been living with dystonia for years. Tom's perspective as a long time dystonia patient is invaluable, offering coping skills, healthy living strategies, and treatment options. He also provides practical information for emotionally adjusting to the diagnosis and subsequent lifestyle changes, and how to live in the world with something "different." Testimonials from other patients provide additional perspective. Having suffered for many years and not wanting the same for others, Tom compiled a ton of strategies for dealing with all that dystonia brings, such as pain, anger, fear, depression, anxiety, stress, grief, relationships, shame, as well as healthy lifestyle strategies, pain management, how to learn to accept and rebuild, dealing with the public and how to talk about dystonia, treatments, tips for dealing with the diagnosis and life changes down the road, what to expect at your doctor appointments, medications, the work environment, the disability process, tips and tricks for doing daily activities with more ease, and a ton of patient testimonials. Diagnosis Dystonia is a must read for patients, family, friends, caregivers, health care providers, researchers, and anyone who knows someone living with dystonia or other chronic health condition. Readers will benefit from the knowledge, wisdom, and experience Tom has gained through first learning to cope with dystonia and then improving upon the life he leads. This book will help others find their own path in pursuing life in which dystonia is not the focus, but a catalyst for finding better days. Tom now uses his experience and education as a certified professional life coach to help people with dystonia and other life challenges. From the Author: Why this book? There are not many books available on dystonia and most that are available were written by people who do not have dystonia. I felt there was a great need for a book from the perspective of patients, as our experiences are uniquely different than those who never walked a day in our shoes. This book provides readers with a wide window into life with dystonia through the eyes of those who live with this challenging condition. It is arguably the most comprehensive book currently available on dystonia, covering numerous issues we face on a daily basis and providing countless strategies for overcoming obstacles and living a productive life. My goal is to provide you with as much information possible to make your life with dystonia easier. This book need not be read from cover to cover. It is formatted so the reader can jump to chapters and topics of relevance and interest. Although this book centers on dystonia, much of the information can be applied to any health condition or other life challenge. It provides useful strategies and tools for any life circumstance. Sign up for a free newsletter at www.tomseamancoaching.com

Living in a Body With a Mind of its Own

Living in a Body With a Mind of its Own
Author: Rev. Mike Beck
Publisher: AuthorHouse
Total Pages: 108
Release: 2013-07-09
Genre: Biography & Autobiography
ISBN: 148176506X

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For the past 20 years, I have lived with a rare and currently incurable neurological illness known a dystonia. This illness can affect numerous different muscles in the body causing them to spasm in ways we cannot control, forcing us to "live in a body with a mind of its own." This book was written to be of help to individuals who struggle with this frustrating and often painful illness. However, it contains valuable lessons for anyone dealing with adversity. If you are struggling with illness, the death of a loved one, depression, a broken relationship, the loss of a job, or dealing with one of life's many transitions, this book is also for you. People with dystonia and other individuals will find many of the same feelings described in the book resonating within you. Once you have come to grips with the emotions involved in your own adversity, you are ready to roll up your sleeves and deal with "life as it is" in a more positive manner. Join me on a road you never expected to travel and filled with numerous twists and turns along the way. The journey may never end in this life, but my hope is that by reading this book life's road will become a little easier for you to travel. Rev. Mike Beck

Spasmodic Torticollis Handbook

Spasmodic Torticollis Handbook
Author: Karen Frei, MD
Publisher: Springer Publishing Company
Total Pages: 131
Release: 2003-07-01
Genre: Medical
ISBN: 1934559407

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Spasmodic torticollis, also known as cervical dystonia, affects about three people in 10,000, or an estimated 85,000 individuals in the United States alone. Despite this, there has been until now a lack of information outside of the professional medical literature for use by individuals with this disorder and their families. This book provides comprehensive information on the disorder for people with spasmodic torticollis and those close to them. Medical terms and concepts are introduced sequentially and then used as building blocks for the later discussion. Beginning with a clear definition of the disorder, opening chapters categorize this neurologic disease as one of the broader category of movement disorders, and differentiate it from other conditions with which it is often confused. The authors then present a stepwise introduction to the relevant anatomy and physiology of the nervous system and neck. They draw on the experiences of their patients to build a progressive depiction of the experiences an individual might have as he or she goes through the initial onset of symptoms, progression of the disorder, seeking medical care, diagnosis, treatment, and subsequent outcome. Personal vignettes from the experiences of selected patients are provided where they illustrate particular points in the discussion. Subsequent chapters discuss various modes of treatment for spasmodic torticollis. Prior to the mid-1980?s, there were no specific treatments for this disorder. Nearly all treatment consisted of using oral medications that were primarily intended for other medical conditions. Since most of these medications are still in use, and a few new ones have been added, a chapter is devoted to detailing them and discussing the general principles of medication therapy. During the past decade, chemodenervation using botulinum toxin has become the primary and most effective treatment for spasmodic torticollis. For those few patients who require surgery, a description is provided of the neurosurgical techniques developed during the last twenty years specifically for its treatment. The final chapter is a manual of therapeutic rehabilitation exercises designed to alleviate the symptoms of spasmodic torticollis. These exercises can be performed by most patients with no assistance and a bare minimum of equipment. Since each person?s case of spasmodic torticollis is different, only certain of the exercises may be appropriate for any given individual. They should be undertaken only after discussion with your physician. These exercises are accompanied by detailed illustrations that emphasize the particular muscles relevant to each posture or movement. About the Authors: Dr. Pathak is a neurologist with a special interest in the neurologic rehabilitation of movement disorders, especially spasmodic torticollis. Dr. Frei is a neurologist specialized in the field of neurogenetics, and has conducted clinical trials on a number of movement disorders, including spasmodic torticollis. Dr. Truong is a neurologist and movement disorders specialist. He has conducted active research in the management of movement disorders, including spasmodic torticollus. He was one of the pioneers in the use of botulinum toxin to manage this condition, and has lectured worldwide on the management of movement disorders.

Holding the Hope

Holding the Hope
Author: Karen K. Ross
Publisher:
Total Pages: 54
Release: 1996-01-01
Genre: Dystonia
ISBN: 9780965994125

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Rehabilitation in Movement Disorders

Rehabilitation in Movement Disorders
Author: Robert Iansek
Publisher: Cambridge University Press
Total Pages: 263
Release: 2013-05-23
Genre: Medical
ISBN: 110701400X

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Provides a broad overview of current rehabilitation approaches, emphasizing the need for interdisciplinary management and focussing on deliverable outcomes.

Dystonia and Dystonic Syndromes

Dystonia and Dystonic Syndromes
Author: Petr Kanovsky
Publisher: Springer
Total Pages: 254
Release: 2015-04-13
Genre: Medical
ISBN: 3709115167

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The current concept of dystonic movement connects the abnormal function of somatosensory pathways and somatosensory analyzers with the dystonic performance of motor action, which is based on the abnormality of sensorimotor integration. This concept is reflected not only in idiopathic dystonia, but also in secondary and symptomatic dystonias. This book will give a comprehensive account of the history of the terms dystonia and dystonic, the physiology of dystonic movement and the genetics and clinical appearance of primary and secondary dystonias. Taking into consideration latest research findings, Dystonia and Dystonic Syndromes offers an in-depth discussion of current treatment options available for dystonia, including pharmacotherapy, surgery and neurorehabilitation. Therefore, it serves as a valuable reference for practitioners in the fields of neurology, neurosurgery, psychiatry and neuroradiology as well as for neuroscientists.