Families, Illness, And Disability

Families, Illness, And Disability
Author: John Rolland
Publisher:
Total Pages: 344
Release: 1994-06-09
Genre: Family & Relationships
ISBN:

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Practitioners will learn how to help families live well despite physical limitations and the uncertainties of threatened loss, how to encourage empowering rather than shame-based illness narratives, how to rewrite rigid caregiving scripts, how to encourage intimacy and maximize autonomy for all family members.

Helping Couples and Families Navigate Illness and Disability

Helping Couples and Families Navigate Illness and Disability
Author: John S. Rolland
Publisher: Guilford Publications
Total Pages: 417
Release: 2018-04-20
Genre: Psychology
ISBN: 1462534953

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Couples and families face daunting challenges as they cope with serious illness and disability. This book gives clinicians a roadmap for helping affected individuals and their loved ones live well with a wide range of child, adult, and later-life conditions. John S. Rolland describes ways to intervene with emerging challenges over the course of long-term or life-threatening disorders. Using vivid case examples, he illustrates how clinicians can help families harness their strengths for positive adaptation and relational growth. Rolland's integrated systemic approach is useful for preventive screening, consultations, brief counseling, more intensive therapy, and multifamily groups, across health care settings and disciplines. This book significantly advances the clinical utility of Rolland?s earlier landmark volume, Families, Illness, and Disability.

Families Living with Chronic Illness and Disability

Families Living with Chronic Illness and Disability
Author: Paul W. Power
Publisher: Springer Publishing Company
Total Pages: 308
Release: 2004-07-20
Genre: Medical
ISBN: 9780826155818

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To help families manage an intense medical-related event, Power and Dell Orto propose that a family-oriented life and living perspective should be combined with a family intervention philosophy. Stressing acknowledgment of the adverse effects of the illness and an affirmation approach to family struggle and opportunities, the authors explore issues relevant to treatment, family adaptation, quality of life, and family survival. A unique feature of the text includes the organization of the chapters around thought-provoking personal statements followed by questions/experiential tasks designed to stimulate thought and discussion. This book is must reading for health and allied health professionals including physicians, nurses, rehabilitation counselors, social workers, psychologists, and family advocates and will serve as a useful textbook for professionals-in-training.

Handbook of Health Social Work

Handbook of Health Social Work
Author: Sarah Gehlert
Publisher: John Wiley & Sons
Total Pages: 769
Release: 2006-03-20
Genre: Political Science
ISBN: 0471758884

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The Handbook of Health Social Work provides a comprehensive and evidence-based overview of contemporary social work practice in health care. Written from a wellness perspective, the chapters cover the spectrum of health social work settings with contributions from a wide range of experts. The resulting resource offers both a foundation for social work practice in health care and a guide for strategy, policy, and program development in proactive and actionable terms. Three sections present the material: The Foundations of Social Work in Health Care provides information that is basic and central to the operations of social workers in health care, including conceptual underpinnings; the development of the profession; the wide array of roles performed by social workers in health care settings; ethical issues and decision - making in a variety of arenas; public health and social work; health policy and social work; and the understanding of community factors in health social work. Health Social Work Practice: A Spectrum of Critical Considerations delves into critical practice issues such as theories of health behavior; assessment; effective communication with both clients and other members of health care teams; intersections between health and mental health; the effects of religion and spirituality on health care; family and health; sexuality in health care; and substance abuse. Health Social Work: Selected Areas of Practice presents a range of examples of social work practice, including settings that involve older adults; nephrology; oncology; chronic diseases such as diabetes, heart disease, and HIV/AIDS; genetics; end of life care; pain management and palliative care; and alternative treatments and traditional healers. The first book of its kind to unite the entire body of health social work knowledge, the Handbook of Health Social Work is a must-read for social work educators, administrators, students, and practitioners.

Intellectual Disability

Intellectual Disability
Author: James C. Harris, M.D.
Publisher: Oxford University Press
Total Pages: 236
Release: 2010-06-24
Genre: Medical
ISBN: 0199781524

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Approximately 2.5 million people in the United States--one percent of the population--have an intellectual disability (previously referred to as mental retardation). These conditions range from genetic disorders such as Down syndrome to disabilities caused by infectious diseases and brain injury. Intellectual Disability: A Guide for Families and Professionals, by one of the country's foremost authorities on intellectual disability, is a comprehensive resource that will be of importance to anyone with a personal connection to a child or adult with a neurodevelopmental disorder. Emphasizing the humanity of persons with intellectual and related developmental disabilities, psychiatrist and pediatrician James Harris provides essential information on assessment and diagnosis of intellectual disability, treatments for specific disorders, and ways to take advantage of the wide array of services available today. The focus throughout is on the development of the person, the positive supports necessary for self-determination, and, to the extent possible, independent decision making. Harris also surveys historical attitudes toward intellectual disability, the medical community's current understanding of its causes and frequency, and the associated physical, behavioral, and psychiatric conditions (such as seizure disorder, depression, and autism) that often accompany particular types of intellectual disability. The book addresses legal, medical, mental health, and research-related issues as well as matters of spirituality, highlighting the ways in which individuals with intellectual disability can meaningfully participate in the spiritual lives of their families and their communities. Each chapter ends with a series of key points to remember, and the book concludes with a list of additional resources of further interest. Intellectual Disability is a must-read for parents and families of those with neurodevelopmental disorders, providing guidance and essential information to help their family members effectively, and to make a significant, positive difference in their lives now and in the future.

Living with Chronic Illness and Disability

Living with Chronic Illness and Disability
Author: Esther Chang
Publisher: Elsevier Health Sciences
Total Pages: 514
Release: 2021-10-12
Genre: Medical
ISBN: 0729588270

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Fully updated and refreshed to reflect current knowledge, data and perspectives

Special Brothers and Sisters

Special Brothers and Sisters
Author: Monica McCaffrey
Publisher: Jessica Kingsley Publishers
Total Pages: 97
Release: 2005-08-15
Genre: Juvenile Nonfiction
ISBN: 1846421454

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Special Brothers and Sisters is a collection of real-life accounts from the brothers and sisters of children with special needs, disability or serious illness, ranging in age from 3 to 18 years. They explain, in their own words, what it's like to live with their siblings. There is a lot of advice available for parents of a child with a disability or illness, but very little about the important issue of educating their siblings about how they feel, and why they may behave differently from other children. These stories - from 40 different families - come with related tips to help siblings deal with some of the things that happen in their family lives. The book also provides a helpful glossary to explain, in child-friendly language, the disabilities and medical conditions mentioned, including: * ADHD * autism * cerebral palsy * cystic fibrosis * Down syndrome Special Brothers and Sisters is an engaging and educational collection that will enable young people and adults to share in the extraordinary experience of being a sibling of a child with special needs, a disability or serious illness.

Parenting Matters

Parenting Matters
Author: National Academies of Sciences, Engineering, and Medicine
Publisher: National Academies Press
Total Pages: 525
Release: 2016-11-21
Genre: Social Science
ISBN: 0309388570

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Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.

Mental Disorders and Disabilities Among Low-Income Children

Mental Disorders and Disabilities Among Low-Income Children
Author: National Academies of Sciences, Engineering, and Medicine
Publisher: National Academies Press
Total Pages: 397
Release: 2015-10-28
Genre: Medical
ISBN: 0309376882

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Children living in poverty are more likely to have mental health problems, and their conditions are more likely to be severe. Of the approximately 1.3 million children who were recipients of Supplemental Security Income (SSI) disability benefits in 2013, about 50% were disabled primarily due to a mental disorder. An increase in the number of children who are recipients of SSI benefits due to mental disorders has been observed through several decades of the program beginning in 1985 and continuing through 2010. Nevertheless, less than 1% of children in the United States are recipients of SSI disability benefits for a mental disorder. At the request of the Social Security Administration, Mental Disorders and Disability Among Low-Income Children compares national trends in the number of children with mental disorders with the trends in the number of children receiving benefits from the SSI program, and describes the possible factors that may contribute to any differences between the two groups. This report provides an overview of the current status of the diagnosis and treatment of mental disorders, and the levels of impairment in the U.S. population under age 18. The report focuses on 6 mental disorders, chosen due to their prevalence and the severity of disability attributed to those disorders within the SSI disability program: attention-deficit/hyperactivity disorder, oppositional defiant disorder/conduct disorder, autism spectrum disorder, intellectual disability, learning disabilities, and mood disorders. While this report is not a comprehensive discussion of these disorders, Mental Disorders and Disability Among Low-Income Children provides the best currently available information regarding demographics, diagnosis, treatment, and expectations for the disorder time course - both the natural course and under treatment.