Linking Data for Health Services Research

Linking Data for Health Services Research
Author: Agency for and Quality
Publisher: Createspace Independent Publishing Platform
Total Pages: 0
Release: 2014-12-31
Genre: Linked data
ISBN: 9781505859430
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Health registries greatly enhance health services research, especially when linked with other data sources such as administrative claims. Recently, concerns about patient privacy and data security have produced policies such as the Health Insurance Portability and Accountability Act (HIPAA) that reduce the availability of sensitive identifying information. In this context, the development of effective record linkage approaches for varying scenarios of data availability is critical. This report presents a conceptual framework and instructional information that scientifically describe the strengths and limitations of different approaches to record linkage of registries to other data sources. The report defines the requirements for high-quality record linkage of registries to other data sources and describes the strengths and limitations of different approaches. By explaining the spectrum of activities involved, it serves as an instructional guide for researchers designing new CER studies using patient registries linked with other secondary data sources. Through this report, we provide an overview of linkage from registries to administrative claims, including considerations for researchers, data managers, information technology managers, and other stakeholders who are likely to be involved in the process of data linkage. We also apply the data linkage framework to a real-world problem and discuss the results.

Linking Data for Health Services Research

Linking Data for Health Services Research
Author: Stacie B. Dusetzina
Publisher:
Total Pages: 77
Release: 2014
Genre:
ISBN:
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Health registries greatly enhance health services research, especially when linked with other data sources such as administrative claims. Recently, concerns about patient privacy and data security have produced policies such as the Health Insurance Portability and Accountability Act (HIPAA) that reduce the availability of sensitive identifying information. In this context, the development of effective record linkage approaches for varying scenarios of data availability is critical. This report presents a conceptual framework and instructional information that scientifically describe the strengths and limitations of different approaches to record linkage of registries to other data sources.

Registries for Evaluating Patient Outcomes

Registries for Evaluating Patient Outcomes
Author: Agency for Healthcare Research and Quality/AHRQ
Publisher: Government Printing Office
Total Pages: 385
Release: 2014-04-01
Genre: Medical
ISBN: 1587634333
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This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.

Health Services Research and Analytics Using Excel

Health Services Research and Analytics Using Excel
Author: Nalin Johri, PhD, MPH
Publisher: Springer Publishing Company
Total Pages: 252
Release: 2020-02-01
Genre: Medical
ISBN: 0826150284
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Your all-in-one resource for quantitative, qualitative, and spatial analyses in Excel® using current real-world healthcare datasets. Health Services Research and Analytics Using Excel® is a practical resource for graduate and advanced undergraduate students in programs studying healthcare administration, public health, and social work as well as public health workers and healthcare managers entering or working in the field. This book provides one integrated, application-oriented resource for common quantitative, qualitative, and spatial analyses using only Excel. With an easy-to-follow presentation of qualitative and quantitative data, students can foster a balanced decision-making approach to financial data, patient statistical data and utilization information, population health data, and quality metrics while cultivating analytical skills that are necessary in a data-driven healthcare world. Whereas Excel is typically considered limited to quantitative application, this book expands into other Excel applications based on spatial analysis and data visualization represented through 3D Maps as well as text analysis using the free add-in in Excel. Chapters cover the important methods and statistical analysis tools that a practitioner will face when navigating and analyzing data in the public domain or from internal data collection at their health services organization. Topics covered include importing and working with data in Excel; identifying, categorizing, and presenting data; setting bounds and hypothesis testing; testing the mean; checking for patterns; data visualization and spatial analysis; interpreting variance; text analysis; and much more. A concise overview of research design also provides helpful background on how to gather and measure useful data prior to analyzing in Excel. Because Excel is the most common data analysis software used in the workplace setting, all case examples, exercises, and tutorials are provided with the latest updates to the Excel software from Office365 ProPlus® and newer versions, including all important “Add-ins” such as 3D Maps, MeaningCloud, and Power Pivots, among others. With numerous practice problems and over 100 step-by-step videos, Health Services Research and Analytics Using Excel® is an extremely practical tool for students and health service professionals who must know how to work with data, how to analyze it, and how to use it to improve outcomes unique to healthcare settings. Key Features: Provides a competency-based analytical approach to health services research using Excel Includes applications of spatial analysis and data visualization tools based on 3D Maps in Excel Lists select sources of useful national healthcare data with descriptions and website information Chapters contain case examples and practice problems unique to health services All figures and videos are applicable to Office365 ProPlus Excel and newer versions Contains over 100 step-by-step videos of Excel applications covered in the chapters and provides concise video tutorials demonstrating solutions to all end-of-chapter practice problems Robust Instructor ancillary package that includes Instructor’s Manual, PowerPoints, and Test Bank

Encyclopedia of Health Services Research

Encyclopedia of Health Services Research
Author: Ross M. Mullner
Publisher: SAGE Publications
Total Pages: 1457
Release: 2009-05-15
Genre: Medical
ISBN: 1452266115
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Today, as never before, healthcare has the ability to enhance the quality and duration of life. At the same time, healthcare has become so costly that it can easily bankrupt governments and impoverish individuals and families. Health services research is a highly multidisciplinary field, including such areas as health administration, health economics, medical sociology, medicine, , political science, public health, and public policy. The Encyclopedia of Health Services Research is the first single reference source to capture the diversity and complexity of the field. With more than 400 entries, these two volumes investigate the relationship between the factors of cost, quality, and access to healthcare and their impact upon medical outcomes such as death, disability, disease, discomfort, and dissatisfaction with care. Key Features Examines the growing healthcare crisis facing the United States Encompasses the structure, process, and outcomes of healthcare Aims to improve the equity, efficiency, effectiveness, and safety of healthcare by influencing and developing public policies Describes healthcare systems and issues from around the globe Key Themes Access to Care Accreditation, Associations, Foundations, and Research Organizations Biographies of Current and Past Leaders Cost of Care, Economics, Finance, and Payment Mechanisms Disease, Disability, Health, and Health Behavior Government and International Healthcare Organizations Health Insurance Health Professionals and Healthcare Organizations Health Services Research Laws, Regulations, and Ethics Measurement; Data Sources and Coding; and Research Methods Outcomes of Care Policy Issues, Healthcare Reform, and International Comparisons Public Health Quality and Safety of Care Special and Vulnerable Groups The Encyclopedia is designed to be an introduction to the various topics of health services research for an audience including undergraduate students, graduate students, andgeneral readers seeking non-technical descriptions of the field and its practices. It is also useful for healthcare practitioners wishing to stay abreast of the changes and updates in the field.

Beyond the HIPAA Privacy Rule

Beyond the HIPAA Privacy Rule
Author: Institute of Medicine
Publisher: National Academies Press
Total Pages: 334
Release: 2009-03-24
Genre: Computers
ISBN: 0309124999
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In the realm of health care, privacy protections are needed to preserve patients' dignity and prevent possible harms. Ten years ago, to address these concerns as well as set guidelines for ethical health research, Congress called for a set of federal standards now known as the HIPAA Privacy Rule. In its 2009 report, Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research, the Institute of Medicine's Committee on Health Research and the Privacy of Health Information concludes that the HIPAA Privacy Rule does not protect privacy as well as it should, and that it impedes important health research.

Health and Care Data

Health and Care Data
Author: Dalibor Stanimirović
Publisher:
Total Pages: 0
Release: 2023
Genre:
ISBN: 9789289059466
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An indispensable prerequisite for answering research questions in health services research is the availability and accessibility of comprehensive, highquality data. It can be assumed that health services research in the coming years will be increasingly based on data linkage, i.e., the linking, or connecting, of several data sources based on suitable common key variables. A range of approaches to data collection, storage, linkage and availability exists across countries, particularly for secondary research purposes (i.e., the use of data initially collected for other purposes), such as health systems research. The main goal of this review is to develop an overview of, and gain insights into, current approaches to linking data sources in the context of health services research, with the view to inform policy, based on existing practices in highincome countries in Europe and beyond. In doing so, another objective is to provide lessons for countries looking for possible or alternative approaches to data linkage. Thirteen country case studies of data linkage approaches were selected and analysed. Rather than being comprehensive, this review aimed to identify varied and potentially useful case studies to showcase different approaches to data linkage worldwide. A conceptual framework was developed to guide the selection and description of case studies. Information was first identified and collected from publicly available sources and a profile was then created for each country and each case study; these profiles were forwarded to appropriate country experts for validation and completion. The report presents an overview of the included countries and their case studies (Chapter 2), with key data per country and case study in the appendices. This is followed by a closer look at the possibilities of using routine data (Chapter 3); the different approaches to linkage (Chapter 4); the different access routes for researchers (Chapter 5); the use of data for research from electronic patient or health records (Chapter 6); foundational considerations related to data safety, privacy and governance (Chapter 7); recent developments in cross-border data sharing and the European Health Data Space (Chapter 8); and considerations of changes and responses catalysed by the COVID-19 pandemic as related to the generation and secondary use of data (Chapter 9). The review ends with overall conclusions on the necessary characteristics of data to inform research relevant for policy and highlights some insights to inspire possible future solutions - less or more disruptive - for countries looking to expand their use of data (Chapter 10). It emphasises that investing in data linkage for secondary use will not only contribute to the strengthening of national health systems, but also promote international cooperation and contribute to the international visibility of scientific excellence.